Nov. 2014 This week I got an unexpected health diagnosis. It kind of knocked my socks off. It also took away my ability to make beads anymore. So I am changing my blog. I am sure I will write about beads sometimes. I have a whole studio to part with, but I have health issues that are much more important and I want to share my thoughts and challenges on this blog. I hope you will come along with me and share your words of wisdom or encouragement.
Follow by Email
Sunday, April 16, 2017
Today I received a post on my blog from a gal named Cathy Randy. It's the third reply under my Honesty post and also shown below. As I began reading I thought how nice, someone else with IPF is writing to me.....then I read more. So many incorrect facts within this little email. Number one, the drug she says she is taking as an immune suppressant isn't meant for people who have IPF. It's meant to be taken after an lung transplant, which she did not mention. It is to keep the body from rejecting the transplanted organ, not cure the disease. A transplanted lung does not have IPF. Then she says she found these people in south Africa who make these herbal medications and they have miraculously cured her. Don't you think if that was really happening that the doctors who treat this disease would know that? IPF is a deadly disease. There is no cure. Do you have the slightest clue what that really means to the person with that kind of diagnosis? It's devastating. The ONLY treatment for Idiopathic Pulmonary Fibrosis is a lung transplant. There are some prescription medications that slow the life ending process down, but there is NOTHING, as in NO THING that will stop this disease. Do NOT spread false hope to people who are desperate for a cure! I tried to find this woman's website.....surprise,surprise no access, just an address to order the herbal supplement. How evil can some people be?? I'm a retired RN and to me people who seek out those who are dying and give them false hope, in the guise of a cure, ( that costs money), are the scum of the earth. So Cathy Randy, if you are reading this, shame on you trying to take advantage of people who have only one hope, and that is a lung transplant!! Do something good in your life, become an organ donor, then you really would be doing something for those who have IPF.