So much has happened in the last month. I went for my check up with my pulmonologist about a month ago. My numbers were down, meaning my lungs are not functioning as well as they were since my last visit. We talked about a new trial drug that my doctor is involved with. He asked if I wanted to be involved in the study and of course I said yes. While there I asked if I would ever be considered for a lung transplant. The answer was that my numbers were low enough that I could be considered now. NOW??? Good news and bad news. Gosh, my lungs are now bad enough that a transplant is a consideration? Scary, but then maybe good because at least there is some hope, right? Would I want to do this......yes, yes, yes. I want to live, I want to watch my grandchildren grow. I want to see sunsets, eat ice cream, make more beads........, and so it begins. On Sept 22 I go for my first meeting with the transplant team. The evaluation is extensive, lab work, CT scans, heart catheterization, colonoscopy etc. All used to evaluate my potential for being a candidate for new lungs. It will not be decided over night.
I was told I should take someone with me to the first interview, someone who could also ask questions and take notes HB is so forgetful these days. He said I need to take someone else. I have a good friend who is a nurse and I thought maybe I should take her, but then I thought of my son. Oh he probably wouldn't want to go, but he has a great memory, and he is the closest family I have here in Louisville. I gave him every chance to say no, but he said yes, and that made me happy. So the adventure begins. I am happy, scared, worried, excited, sad, all at the same time.
I was told I should take someone with me to the first interview, someone who could also ask questions and take notes HB is so forgetful these days. He said I need to take someone else. I have a good friend who is a nurse and I thought maybe I should take her, but then I thought of my son. Oh he probably wouldn't want to go, but he has a great memory, and he is the closest family I have here in Louisville. I gave him every chance to say no, but he said yes, and that made me happy. So the adventure begins. I am happy, scared, worried, excited, sad, all at the same time.
I'm happy, scared, worried, excited, and sad for you, too! Thank you for the update. I'm glad there is hope. I will be thinking of you on the 22nd. Sending lots of love.
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