I did find out two interesting things during my last appointment with Dr. M and this appt. with the nurse practitioner. First of all Dr. M said I can make beads some of the time if I wear that big ole respirator all the time I'm making them! That made me kind of happy because the thought of breaking up my studio was hard. He said that lungs that are affected by metals, silica, and glass particles are usually involved in the upper lobes. It's my lower lobes that are the most affected right now. K, the nurse, told me that my CT scan does not show any asthma at all in my lungs. This means that during the last 5 years or so, when everyone thought I had asthma, it was really the beginning of the Idiopathic Pulmonary Fibrosis, which from now on will be referred to as IPF. So that means I've had this longer than I thought and just maybe I am on a slow track.
I will know if I get accepted into the drug study in another 3 weeks or so. I do hope I get in, even if I get the placebo. I would feel like I was doing something positive about this disease and maybe it could be stopped for people newly diagnosed.
I am still mostly in a stupor about all of this, but it is becoming more real to me. I don't cry as much as I used to, which is good. I have some great friends who make me laugh and that is a wonderful thing. I'm ready to fight this thing head on, there is just a little bitty part of me that is scared, but I am determined to be positive. Thanksgiving is coming...let the party begin!