I saw my pulmonologist this past week. I won't know if this new drug is slowing the disease process until I have another CT scan and that won't be for 3-4 months. I waited 2 hours for him and then he was only with me for about 4 min. Why does this happen...overbooking? Too many people with the same disease and not enough doctors to follow them? Emergencies? Who knows, but it isn't good for the mind of someone newly diagnosed...there are so many questions, so many fears.....and no time to ask the questions that haunt me.
I've discovered that having a disease with no cure is very lonely. No one wants to talk about it. It's as if we don't discuss it, it isn't there. Or maybe people think they shouldn't ask me about it because it will make me think about it......like it is ever off my mind.