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Thursday, September 15, 2016


 So much has happened in the last month.  I went for my check up with my pulmonologist about a month ago.  My numbers were down, meaning my lungs are not functioning as well as they were since my last visit.  We talked about a new trial drug that my doctor is involved with.  He asked if I wanted to be involved in the study and of course I said yes.  While there I asked if I would ever be considered for a lung transplant.  The answer was that my numbers were low enough that I could be considered now.  NOW???  Good news and bad news.  Gosh, my lungs are now bad enough that a transplant is a consideration?  Scary, but then maybe good because at least there is some hope, right?  Would I want to do this......yes, yes, yes.  I want to live, I want to watch my grandchildren grow.  I want to see sunsets, eat ice cream, make more beads........, and so it begins.  On Sept 22 I go for my first meeting with the transplant team.  The evaluation is extensive, lab work, CT scans, heart catheterization, colonoscopy etc.  All used to evaluate my potential for being a candidate for new lungs. It will not be decided over night.
I was told I should take someone with me to the first interview, someone who could also ask questions and take notes  HB is so forgetful these days. He said I need to take someone else.  I have a good friend who is a nurse and I thought maybe I should take her, but then I thought of my son.  Oh  he probably wouldn't want to go, but he has a great memory, and he is the closest family I have here in Louisville.  I gave him every chance to say no, but he said yes, and that made me happy. So the adventure begins.  I am happy, scared, worried, excited, sad, all at the same time.

1 comment:

  1. I'm happy, scared, worried, excited, and sad for you, too! Thank you for the update. I'm glad there is hope. I will be thinking of you on the 22nd. Sending lots of love.